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  1. I finished reading the book last night… oh my, the awful hell you have been through! I can only begin to imagine the pain of that journey. I am grateful that you still have your son and your sanity. It could have turned out differently. I’ve heard similar stories for years and was always a little worried about my focus on alternative and wholistic healing modalities and how that could rub the medical establishment the wrong way. They have an insane amount of power. I worked in a high school counseling office for many years and worked with CPS at times. The people I had contact with were very caring and seemed to be good people. But their focus, rightly, was on violence and abuse in the home, not on medical choices of parents. Having the medical establishment become a place of power over people’s health choices is not okay with me. The arrogance in that is amazing to me. I champion your efforts to educate and bring more awareness to this unhealthy situation. Also, I hope that you have found some peace of mind and the ability to forgive. It’s crucial to your own health. Blessings and love to you and your son.

  2. In the ancient days, wisdom was conveyed in story telling and parables. This amazing book is neither and both at the same time, one of the paradoxes of life that itself signals truth. The story is about a loving mother who surrenders her child to the medical establishment, only to see him get worse under their care. This is not so bad, as humans are known to fail. but what follows is horror, a virtual physical and emotional torture in the name of medicine, justified by tribal rule — what we are doing is right, and we’ll punish you if you protest. The loving papa-bear-father protests and is threatened and punished — the medical wagons circle up, and instead of owning they’d made a bad diagnosis, they scape-goated the father and legally restrained him from being the father the boy needed him to be. Even more so, the story is about a very courageous adolescent boy who overcomes all odds and heals his body through sheer determination and grit. The story is ongoing, and the boy turned young-adult is again walking, playing music, and leadng what appears to be a normal life, finding the life he once dreamed of. But his anger is unfinished, as the world turns. Like looking for grains of sand that reveal what beaches are like, one can often find meaning by exploring the ocean of life, and leaving the trail of scabs to wash ashore. After all, life is a journey, and we all share one truth — we never know when it will end, or be obliterated by human stupidity. But he’s laughing and smiling again, and he’s one of my all-time favorite people.

  3. Barbara Tillman on February 9, 2013 at 8:14 am said (in comments to “The Story, Briefly:)

    I have read this book and completely outraged that the doctors, CPS and the courts and lawyers totally screwed the parents of this child supposedly in protective custody. I have never heard of doctors that did not encourage second and even third opinions from other doctors or experts in their field. Everyone should know that something like this could happen to them. I do hope the boy can get on happily with his life.

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